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2nd Annual
Pasta For A Cure: Our last fundraising event of the year
was another resounding success selling out to a capacity crowd of
over 250. Guests dined on Olive Garden Pasta, salad and breadsticks
at the Transcona Memorial United Church in Transcona. Special thanks
goes to the staff at Olive Garden and all of those who pitched in
and help serve, sing, or clean up afterwards.A great time was had
by all!
[SEE
THE PICTURES CLICK HERE]
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Garage
Sale For A Cure: People from all over Winnipeg enjoyed
the deals at the Chad's Hope Garage Sale. There were many donations
that came in over the winter months and it was time to clean house!
Many thanks to Char for her continued dedication and Bonnie who donated
the space. Just under a thousand dollars was raised. Thanks again
everyone! |
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Bowl
For A Cure: We kicked off our first event of 2005 at Rossmere
Lanes in East Kildonan on May 7th, 2005. There was a good turn out
of enthusiastic bowlers, young and old alike, approximately 12 teams
of 6 competing in 4 bingo bowl matches. The enjoyment of the event
was evident as numerous people stayed right to the end and bowled
all 4 matches. Thanks to all those who organized the event, made up
the prizes, and worked the raffles. Just under two thousand dollars
was raised for the fund.
[SEE THE PICTURES CLICK HERE] |
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Starting
the New Year off Right: It's a new year, and what better
way to start off the year by making our first real financial contribution
the Nathan's Battle Foundation, the cornerstone foundation that helps
foster awareness about Late Infantile Batten's Disease and helps raise
and distribute funds for ongoing research. The committee presented
a cheque to Phil Milto, President of Nathan's Battle in the amount
of $20,000 USD. It is hoped that we will be able to raise and distribute
more funds in the future to other honorable organizations that also
foster awareness, provide support, and sponsor research initiatives
in Batten's Disease. We should be proud of this accomplishment, and
proud of making Chad's hope become a reality. The countless hours
of hard work and dedication paid off. |
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- HAPPY NEW YEAR -
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This
year was filled with tribulations for the Chad's Hope Committee. Poor
attendance for some events, and the death of our precious Chad. Although
we did not achieve the financial target we set out to raise, we should
still all be proud that we raised $40,000 this year for the fund.
We further created an incredible amount of awareness about this disease
and the hope for a better life through our events, posters, and through
the media such as the A Channel. Through our continued efforts in
the new year, Chad's dream will one day become a reality, and children
and their families will not longer have to suffer as hope will now
be there. |
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Pasta
For A Cure: Our last fundraising event of the year was
a resounding success. A taste of Italy came to Oxford Heights in support
of the Chad's Hope Fund. 210 guests enjoyed an Olive Garden specialty,
spaghetti, salad, and breadsticks. A beautifully labeled special edition
of Chad's Hope House Wine was also sold to guest for $10 a bottle.
After expenses the event raised over $1800 for the Chad's Hope Fund.
Special thanks goes to the Olive Garden, Lindsy for organizing the
event, and all of those who pitched in and help serve, sing, or clean
up afterwards. [SEE
THE PICTURES CLICK HERE] |
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2
Chance Garage Sale For A Cure: If people didn't get to
the garage sale the first time, they had a second chance the weekend
of July 26th, 2004. Many donations continued to come in after the
last garage sale, and with the new and old goods, Bonnie's garage
was filled to the rafters, so, Char and Bonnie worked feverishly once
again and another successful Chad's Hope initiative is complete. The
sale raised $1224 for the fund. |
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Run
or Walk For A Cure: St. Vital Park was the site of the
Pacesetter's 10K Prediction Run which occurred on July
10th, 2004. The event was sponsored by the Manitoba Runners Association,
Pacesetters Sportswear, and Canadian Footwear Inc. The early morning
start (8am) was timed just right as temperatures soared that afternoon.
For those runners who wanted to best their finish times, the 10k prediction
run was just what they were looking for while the 3k walk was just
perfect for those of us who were up to the 10k challenge. Thanks to
everyone who attended. Event proceeds are still being tallied! See
Event Pictures Click Here. |
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Garage
Sale For A Cure: Canada Day was the backdrop of the First
Annual Chad's Hope Garage Sale. Hundreds of bargain hunters
rummaged through the endless amounts of goods for sale. Everyone walked
away with something, and the proceeds of those something's amounted
to well over $1743 for the Chad's Hope Fund. Special thanks goes out
to Bonnie, our 'Chad's Hope Angel', Char, and Kera, who worked
feverishly sorting items, pricing items late the night before, and
setting up at the crack of dawn. Thank you, a rest is well deserved!
Click Here
to See the Garage Sale Pictures. |
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Comedy
For A Cure: Just over $1000 was raised on Thursday, June
17th, 2004 at Rumor's Comedy Club- Comedy for a Cure. Although ticket
sales were below what we were hoping for, the evening was still a
success as proceeds were raised from both ticket sales and raffle
sales. Thanks to Jeannette, Bruce, and Tara for working the raffle
table, and to all those who sold tickets and made this evening a success.
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The
First Child Receives the Treatment: It took 3.5 years in
the making and now the first child was treated in June of 2004. The
child attended New York and underwent the gene replacement treatment.
The child was treated with AAV2cuCLN2, the drug that had been under
development for the last 3 years. "This is a historical accomplishment
which would not of been possible without all the supporters of NBF.
Everyone who ever supported NBF in anyway should be proud of this
initial accomplishment" (Nathan's Battle, 2004). |
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Car
Rally/Scavenger Hunt for a Cure: Another fun Chad's Hope
Event on Sunday, May 16th, 2004 at Memorial Park. 15 Teams raced
(within the speed limit) to find items scattered throughout the
city. Congratulations to the winning teams and thank you for all
those who pitched in and made this event a success! Click
here to see the event pictures.
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The
CD's Are Ready! Ian announced at at the April 28th meeting
that the Aspire CD's are finally ready for distribution.
CD's can be purchased through Ian or through Topline Auto Supply.
Committee members were the lucky ones to purchase the first copies
hot off the press! Looks and sounds great! Preview
it Here! |
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Spiritual
Music For A Cure: On Saturday, April 24th, 2004 at the
Blessed Sacrament Church in Transcona attendees were serenaded with
spiritual music from Decernment and Mercy Mercy. The evening was full
of faith filled enlightenment, joy, and hope. Thanks to all who attended,
helped putting it together, and performed. Just over $1000 was raised
for Chad's Hope. See Picture
on the Archives Page. |
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Concert
for a Cure: On Friday, April 23rd, 2004 at the Winnipeg
Convention Centre was home to the Chad's Hope Concert for a Cure.
The concert featured 4 great Winnipeg bands - Freeman, IWitness, Wreckless,
and Harlequin. Ian also performed two songs from the upcoming CD release.
The success of the concert is a testimony to how we ALL can do great
things, and have a good time doing it. Special thanks to all those
who attended, helped, donated prizes, and performed. Just over $5000
was raised for the Chad's Hope Fund. Way to go all! Click
here to see the event pictures.
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Chad Begins a New
Life: On Easter Sunday, April 11th, 2004 at 0700 hrs
in the morning our family was given the sad news of Chad's passing.
He served his life as an inspiration to each and everyone of us,
and his story touched the hearts of thousands. We are comforted
to know that, through our faith, he is with Jesus and that all his
pain and suffering are no more. At an emotional committee meeting
on April 14th, 2004 the Chad's Hope Committee members reaffirmed
their commitment to continuing Chad's fight for a cure with the
hopes that one day all children with the disease will be able to
look forward to a full, happy, and healthy, life. Chad will be missed,
but his works will live on through us and through each child his
story and motivations will save.
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Hardcore
For A Cure: Several of Winnipegs up and coming bands joined
forces and put on an evening of varied music at the Royal Arms on
Albert Street in Downtown Winnipeg. The event raised $400.00 for the
Chad's Hope Fund. |
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Chad's
Hope Benefit Mugs: The Chad's Hope Benefit Mugs are now
for sale and will sell for a $5 contribution. The mugs display the
Chad's Hope logo, web site address, and a corporate sponsor on the
backside. All the mugs are black and are very sharp. You can acquire
your mug through kera. |
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Bulletin
Board and Chat Group Addition: A discussion group has now
been added to the site with the goal of facilitating contact between
families, to stimulate discussion around Late Infantile Batten Disease,
and to create an ongoing awareness about the disease. The group has
numerous features including bulletin board posting, real time chat,
pictures and much much more. You can join the group by simply CLICKING
ON THE YAHOO ICON. All members must
register with Yahoo.ca and obtain
a yahoo e-mail address. This is free service that is a benefit to
you as you get more disk space than you do with Hotmail. |
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Social
For a Cure (14-Mar-04):
The social was a resounding success with 620 tickets sold and $10,000
raised. Thanks to the many who sold tickets, put in the time to work
the door, sold silent auction tickets, gathered donations, and made
this event a reality. [Click
Here to View the Pictures] |
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Chad's
Hope Benefit CD Update (25-Feb-04):
The CD entitled "Aspire" has now been recorded and is currently
being mastered (mixed and edited). [Click
Here to Preview the CD] |
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Chad's
Hope In Print:
story printed in the Transcontinental Media (Times, Herald, &
Lance Community Papers) on February 12th, 2004. {click
here} |
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The Blessed Sacrament Knights of
Columbus presented Ian with a cheque from the proceeds from
the "Breakfast for a Cure" which was sponsored by the Transcona
Blessed Sacrament Council 13185. See the
News Archives Page for more details about the cheque presentation.
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Ian performs on A-Channel's
"Big Breakfast" on February 2, 2004. |
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Yellow Ribbon - The Symbol of Hope
(01-Feb-04):
Committee members adopt the yellow ribbon, a recognized
symbol of hope, to represent Chad's Hope. Donations
are to be received for the ribbons. |